Arthritis and Musculoskeletal Alliance

A4T

 

World Network Conference 2012 Bone & Joint Decade 2010-2020

 

Ho Chi Minh City, Viet Nam 

 

 

Thursday 29th November to Sunday 2nd December

The 2012 BJD World Network Conference will be hosted by the Viet Nam National Action Network (NAN) and coordinated by Professor Vo Van Thahn.

The meeting programme and further information will soon be available on the website www.boneandjointdecade.org and will be distributed via email.

We hope you can participate, representing your National Action Network, Society, Organisation, or as an individual interested in influencing health policy and gaining priority for musculoskeletal health.

We hope for a strong engagement by societies and organisations from South East Asia.

 

The Cochrane Library – Special collections

NEW: Exercise for musculoskeletal conditions

Musculoskeletal conditions frequently have an adverse influence on health and quality of life, and cause more functional limitations than any other group of disorders within the adult population in most developed countries. Estimates from global data indicate that one in four people will experience chronic musculoskeletal pain at some time, and that musculoskeletal conditions are the most commonly reported cause of chronic impairments in the United States. Thus, musculoskeletal conditions are considered to be an international public health issue. Exercise therapy is considered an important component of the treatment of musculoskeletal conditions with the aims of: reducing pain; improving joint stability, functional ability, quality of life and aerobic capacity; and preventing bone loss and fractures.

This special collection brings together a selection of Cochrane Reviews assessing exercise for musculoskeletal conditions including: osteoarthritis, osteoporosis and rheumatoid arthritis, ankylosing spondylitis, fibromyalgia, juvenile idiopathic arthritis; regional musculoskeletal conditions in the knee, low back, neck and shoulder; and chronic musculoskeletal pain.

Read Online Now!

Transforming Patient Experience: the essential guide – available now!

Transforming Patient Experience: the essential guide is suitable for anyone with designated responsibility for improving patient experience – either as a provider of services or as a commissioner.

It contains practical guidance and covers the crucial aspects of:

  • The importance of organisational culture
  • Making the case for a patient experience improvements
  • Helping leaders and staff to improve patient experience
  • How to organise a patient experience programme
  • Commissioning for a positive patient experience

The resource includes the full research findings from What Matters To Patients? Developing the Evidence Base for Measuring and Improving Patient Experience a study undertaken by Kings College London and The Kings Fund.  (Commissioned by the Department of Health and the NHS Institute in 2010.)

The resource also highlights real life examples of how different types of organisations across the NHS have captured patient experience to drive service improvement, for example:

  • University College London on their involvement of prospective medical students in the collection of data from patients
  • Hertfordshire Partnership NHS Foundation Trust, who set out to make it easier for those with learning disabilities and their carers to submit their views
  • Essex County Council who realised the value of peer-to-peer work in researching service uptake by supporting volunteers to interview an older patient group

Transforming Patient Experience: the essential guide is intended to be a ‘living resource’ which we hope to update regularly with your case studies and ideas.  We hope that it will prove to be a useful source of ideas and inspiration and enable you to optimise your existing endeavours. 

For more information, visit www.institute.nhs.uk/theguide

 

National Joint Registry - Patient Focus Conference

Free event on 23rd March

From 9.30am to 2pm including lunch at THE WELLCOME COLLECTION

183 EUSTON ROAD, LONDON NW1 2BE

There will be short presentations to begin with from NJR members including clinicians to highlight NJR’s role and how we are working for patient safety.  These will be followed by two more detailed workshops, one looking at our Public & Patient Guide  and another, looking in more detail at NJR data and understanding the findings.  The event will conclude after lunch with a panel Q&A – we will be inviting questions prior to the event as well as picking up on those prevalent topics discussed in the workshops. 

Please visit the website for more information or to book a place, please contact rebecca.beaumont@hqip.org.uk or call 020 7469 2546.

 

 

 ARMA News

ARMA’s main channel of communication with its members is this website. As a key component of our service to the wider UK arthritis and musculoskeletal community, we are currently updating our website to ensure we continue to provide a valuable and easy-to-use resource.

       

 

 Standards Activities

News about development activities of the  Standards of Care give recommendations to local service commissioners and providers for services for the main groups of musculoskeletal conditions.

We greatly value the input of our licensees and want all members of the community to play an active role in this vital activity.

We’ll consult you on any changes that may affect your condition and the wider comunity – ensuring standards remain high, yet achievable.  

 

 

  Commissioning News

News of our engagement at all levels from the Commissioning Board to the Consortia and Healthwatch.

ARMA supports the development of the NHS commissioning board and welcomes their responsibility for specialised commissioning. ARMA encurages the wider engagement of patients and users and promotes the greater involvement of clinicians in commissioning activities.

ARMA through its wider membership is keen to become more involved in the development of outcome measures, implementation of evidence based care pathways and commissioning.

 

 

 

  eCampains

Please complete the below fields to sign up to our e-updates and receive the latest ARMA Campaigns news and actions.

We’ll send you a monthly e-newsletter with news from our campaigns, ways to get invovled and information about other things going on in the community. We’ll also get in touch when there are campaign actions we need your help with, usually around once a month.

We collect your address so that we can make sure we’re only sending you actions that are relevant to where you live.

 

 ARMA News

  • ARMA News: Our new website

    ARMA News: Our new website

         New ARMA website We are pleased to announce the launch of our new website! Our goal with the redesign of our website was to make the information that we give to you easier to find and more timely. If you have any questions or comments about the site in general, or anything in particular, please let us know.    New Features The website includes interactive features that will allow members and user to sign up for our monthly newsletter A4T. The home page also features ...

    Read More ...

  • ARMA e-postcards

    ARMA e-postcards

         ARMA Postcards What is an e-postcard -  it is a notification when new content is published on the ARMA website. To receive an ARMA e-postcard you must first have registered as a user. To subscribe is quite simple, go to your profile, click the link 'Your Subscriptions'. You will then be presented with a page of options, please select the topic area  of  interest. If you have subscribed to a topic, then when new content is published an email will be sent with a summary text ...

    Read More ...

  • NASS launch new telephone Helpline

    NASS launch new telephone Helpline

      The National Ankylosing Spondylitis Society (NASS) is officially launching their telephone helpline for people affected by ankylosing spondylitis (AS)   From 1 September 2011, the Helpline will be open between 0900 and 1200, Monday to Friday and will be staffed by Sally Dickinson, the Information Officer at NASS. Sally, who is also responsible for the published medical information and guidance, will be well supported by the team of medical advisers to NASS that include rheumatologists and physiotherapists.   The type of queries about ...

    Read More ...

  • Member post

    Member post

        Membership of ARMA We welcome applications from organisations working in the field of arthritis and other musculoskeletal conditions. Membership rates are calculated on a sliding scale depending upon size/income. Joining ARMA gives you the chance to add your voice to a growing, well-regarded umbrella organisation and helps to ensure that our policy and campaigning work reflects the needs of your constituency. Member organisations also benefit from sharing information and knowledge and strengthening their links with other organisations in the field.      Other benefits include: Opportunities to participate ...

    Read More ...

  • ARMA Website Development

    ARMA Website Development

        The brief ARMA is the umbrella body providing a collective voice for the arthritis and musculoskeletal community in the UK. ARMA's main channel of communication to members is their website. As a key component of their service to arthritis and musculoskeletal community in the UK, they wanted to ensure they were providing a valuable and easy-to-use resource. ARMA have completed consultation excercise with its members to gain an understanding what members and non-members wanted from this resource, and then to re-design the site ...

    Read More ...

  • Tocilizumab specifically licensed sJIA

    Tocilizumab specifically licensed sJIA

    Trials of a new medicine, called Tocilizumab, suggest that it is thrr times as effective at halting the progression of rheumatoid arthritis as the standard therapy given to most patients. Tocilizumab is a laboratory-made antibody, which works by targeting a biological signalling pathway linked to inflammation and the disease. Rheumatoid arthritis, the crippling auto-immune disease which attacks the joints, is the biggest cause of disability in the UK. The drug was already licensed for the treatment of adults. Tocilizumab is the first drug to be specifically ...

    Read More ...

  • World Arthritis Day – photo-competition

    World Arthritis Day - photo-competition

          Arthritis Day photo-competition and inspire and motivate others with rheumatic and musculoskeletal diseases (RMDs) to become more physically active and 'Move to Improve'    If you have an RMD you can enter a good quality photograph of yourself participating in your favourite physical activity, exercise or sport with a short statement about how this helps you overcome some of the physical challenges of your condition and how being active improves your life (http://www.worldarthritisday.org/action-shot-photo-competition)   Eligibility and prizes The competition is open to all people with RMDs ...

    Read More ...

 

 

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Improving access to NICE approved drugs

NICE is to produce a best practice guide to help trusts develop local formularies, as part of a move to ensure that all patients in England have access to clinically and cost-effective drugs.

Local formularies provide a list of selected or preferred drugs available to local prescribers and have an important role in underpinning safe and effective use of medicines.

However, there is currently no standard process or advice for putting together a local formulary which has led to variations across the country.

A recent report into innovation in healthcare by the Department of Health has highlighted that not all local formularies are including all of NICE’s technology appraisals. This can lead to a postcode lottery where patients miss out on drugs approved by NICE.

 

 

 

 

Healthcare & Education Officer


 

The Paget’s Association, the UK’s only charity supporting people with Paget’s disease of bone, is looking to recruit a Healthcare & Education Officer to build on the excellent work done by the current post holder.

We are looking for an exceptional individual educated to degree level who is able to play a key role in the following areas: 

  • developing the Association’s health and education programmes and education strategy
  • operating and monitoring a help line
  • developing and delivering health education programmes to a variety of audiences
  • the production of information to meet the needs of both lay people and health professionals. 

The post is full-time (37.5 hours) but there are flexible working options available.  For example the role can be home-based for part of the time, although the post holder would be expected to work from the office on a regular basis. The position is permanent subject to a satisfactory 6 month probation period.  Salary, terms and conditions will be based on Band 6 nursing scale in the range of £25,528 to £34,189.  The start point would be dependent upon experience.  The Association operates a company pension scheme with 8% employer’s contribution.  Appointment would be subject to satisfactory references and a Criminal Record Disclosure (Enhanced Level).

The successful candidate must be self-motivated and self-administering, able to organise and prioritise his/her own workload.  Experience of musculoskeletal conditions is essential, as is the ability to communicate with a wide range of audiences.  An important part of the work will be the continuing development of the Association’s information system, so knowledge or experience of the Dept of Health’s Information Standard Scheme would be advantageous.

Application is by e-mail to director@paget.org.uk using a CV, covering letter, supplementary form, with a translation exercise which all candidates must complete. 

The Paget’s Association works within Equal Opportunities Principles.

Closing date for applications is:   Friday 2nd March 2012

Interviews to take place in Walkden on Friday 30th March 2012

Appointment to commence 1st June 2012

The Paget’s Association, 323 Manchester Road, Walkden, Worsley, Manchester, M28 3HH

Tel. No:  0161 799 4646          E-mail:  director@paget.org.uk        Contact:  Marilyn McCallum

To obtain an information pack go to the Association’swebsite

NO  AGENCIES  PLEASE

 

The NASS en Masse sponsored walks are returning this year to London’s Richmond Park, Pollok Park in Glasgow, Bute Park in Cardiff and Portsmouth Pier in May to celebrate World AS Day. NASS is looking for as many people as possible to join them in each location to walk the 5km route and raise funds for NASS. For more information and to register visit the NASS webiste here

 

 

The Scleroderma Society establishes a professorial Chair of Rheumatology at the Bedfordshire and Hertfordshire Postgraduate Medical School

On Wednesday 16 November, Kim Fligelstone and Steve Holloway attended a graduation ceremony at The University of Bedfordshire where Professor Kuntal Chakravarty was conferred the Dame Carol Black Professor of Rheumatology. Dame Carol herself received the award of Honorary Doctor of Science.

Earlier in the year, The Scleroderma Society received a donation which, with Gift Aid, was £125,000, and a request that this be used to help establish a professorial Chair of Rheumatology at the Bedfordshire and Hertfordshire Postgraduate Medical School, which has close links with the University of Bedfordshire. The Medical School acts as an academic resource for medical and healthcare professionals in the region. This is accomplished through the provision of high quality professional development and postgraduate education and by fostering research.

During the year we have been involved in discussions with Professor Les Ebdon, Vice Chancellor of the University of Bedfordshire and Professor Alan Sinclair, Dean and Head of the Medical School. As a result, we are delighted that this has led to the establishment of The Dame Carol Black Chair of Rheumatology and to the appointment of Professor Chakravarty a life member of The Scleroderma Society, as the first incumbent.

The citations at the ceremony for Dame Carol and Kuntal outlined the significant contributions that each has made over many years to research, education and clinical practice in scleroderma. It is a wonderful tribute to Dame Carol that her work has been recognised in this way. Amongst her many achievements Dame Carol founded The Scleroderma Society and is today our Honorary President.

This is a big step for The Scleroderma Society and one which we are very excited about. It is most  fitting that Professor Chakravarty has received this important appointment, and we have been invited to participate in the steering committee which will guide the research programme in the coming years. Along with Kuntal, The Scleroderma Society will report on progress from time to time.

Kim and Steve were privileged to be invited to the ceremony and to join the Vice Chancellor and his other guests for lunch at the university.

 

NRAS want to hear from family members of those who have rheumatoid arthritis for our new survey – ‘Rheumatoid Arthritis: Impact on the Family’. 

Rheumatoid arthritis often strikes in the prime of life and the impact on the family can be considerable. The aims of this survey are to capture what that impact actually is and what support/information family members want and need.
Please click here to read more and take the survey. Alternatively you can download and post a hard copy here or call 0845 458 3969.