|
|
ARMA NewsARMA’s main channel of communication with its members is this website. As a key component of our service to the wider UK arthritis and musculoskeletal community, we are currently updating our website to ensure we continue to provide a valuable and easy-to-use resource. |
|
|
|
Standards ActivitiesNews about development activities of the Standards of Care give recommendations to local service commissioners and providers for services for the main groups of musculoskeletal conditions. We greatly value the input of our licensees and want all members of the community to play an active role in this vital activity. We’ll consult you on any changes that may affect your condition and the wider comunity – ensuring standards remain high, yet achievable. |
|
|
|
Commissioning NewsNews of our engagement at all levels from the Commissioning Board to the Consortia and Healthwatch. ARMA supports the development of the NHS commissioning board and welcomes their responsibility for specialised commissioning. ARMA encurages the wider engagement of patients and users and promotes the greater involvement of clinicians in commissioning activities. ARMA through its wider membership is keen to become more involved in the development of outcome measures, implementation of evidence based care pathways and commissioning.
|
|
|
|
eCampainsPlease complete the below fields to sign up to our e-updates and receive the latest ARMA Campaigns news and actions. We’ll send you a monthly e-newsletter with news from our campaigns, ways to get invovled and information about other things going on in the community. We’ll also get in touch when there are campaign actions we need your help with, usually around once a month. We collect your address so that we can make sure we’re only sending you actions that are relevant to where you live. |
|
ARMA News
|
||
Archive
 |
National MSK Advice and Triage Service launched |
|
A formal launch will take place in the new year, the service during this pilot phase is for Lanarkshire residents with Lothian coming on Board in the new year. We envisage this will run in this phase until May 2012. NHS inform will be reviewing progress daily and at weekly wash up meetings identifying any arising issues and acting on them. It will be an evolving process and the team are most grateful to the clinical staff in Lanarkshire who have made significant efforts to get the programme where it is and will continue to do so for the next few months. NHS inform also want to alert you to the website that has been developed to support self management. This is now in the public domain and there for the use of all, visit the website here. It contains key information about a range of MSK conditions that has been developed through an expert group. It also has been through ‘plain english’ to ensure its readability factor, It contains high quality, evidence based, consistent information about:
You can print off a one pager, as well as a two sided A4 format which can be used now by the public, patients and clinicians. We will be fully evaluating its uptake and user views about its usefulness and ease of navigation. It may well help all service providers and NHS inform suggest that all MSK patients should be directed to these resources in the first instance. The site will be developed over time. If you have any suggestions for inclusion or improvement, please do contact Fraser.Ferguson@nhs24.scot.nhs.uk
|
|
 |
The National Ankylosing Spondylitis Society (NASS) is officially launching their telephone helpline for people affected by ankylosing spondylitis (AS) |
|
From 1 September 2011, the Helpline will be open between 0900 and 1200, Monday to Friday and will be staffed by Sally Dickinson, the Information Officer at NASS. Sally, who is also responsible for the published medical information and guidance, will be well supported by the team of medical advisers to NASS that include rheumatologists and physiotherapists. |
|
|
The type of queries about AS that NASS receive currently, include:
|
|
|
Debbie Cook, Director of the National Ankylosing Spondylitis Society (NASS) says: Around 200,000 people in the UK have ankylosing spondylitis (AS). It usually starts in the late teens and early twenties and can cause lifelong pain and stiffness. Unless treated and managed effectively AS will lead to great pain and can render people immobile and unable to work. |
|
|
One of the main aims of NASS is to provide guidance, advice and information for people with AS and their families. Since January 2011, Sally has already responded to more than 500 requests for information and advice. I am confident that our new Helpline will make even more people aware that NASS is here to help. People unable to use the helpline can also request information or ask for assistance by email to Asknass@nass.co.uk ’. |
|
|
NASS – MEDIA ENQUIRIES Tel: 020 8948 9117 Email: sallyd@nass.co.uk
For more information, please visit www.nass.co.uk. |
KEY FACTS ABOUT AS
|
|
ABOUT NASSNASS was founded by a group of people with AS, doctors and physiotherapists at the Royal National Hospital for Rheumatic Diseases in Bath in 1976. NASS provides physiotherapy groups, support and advice to patients and families, supports research and campaigns to raise awareness of AS and the needs of people with AS. |
|
 |
On Wednesday 25 May, the day of the opening of the EULAR Congress in London, Arthritis Care published a report highlighting the impact of musculoskeletal conditions and emphasising the need for a musculoskeletal strategy. The report, entitled Get a Grip, generated significant media interest and coincided with Earl Howe’s state-ment in the House of Lords that the National Quality Board would be considering the proposal for an MSK strategy later this year. |
|
|
|
|
|
|
|
| In 2011, the theme is If I Were an Olympian. We want people with arthritis to write about their arthritis using this theme. People might choose to focus their writing on accomplishments they have achieved, or goals they are working towards. Or even imagine themselves competing in the Olympic Stadium. |
More Information…For more details and for terms and conditions go to Arthritis Care. |
Want to Enter….Please send entries, of no more than 750 words, to Creative@arthritiscare.org.uk or to Creative Writing competition, Arthritis Care, 18 Stephen-son Way, London, NW1 2HD. Closing date for entries is 29 July 2011 and winners will be announced on 5 September 2011. |
 |
Once again The Scleroderma Society is supporting the Walk for Skin programme organised by The British Skin Foundation.Many members have greatly enjoyed these walks in previous years and they can be a lovely day out for all the family. |
|
This year, any sponsorship money you raise will be shared equally between The British Skin Foundation and The Scleroderma Society. |
|
|
We shall be promoting these events in the newsletter and on our website as usual, but if you would like to find out more and register now, you can do so by clicking on 2011 Walk for Skin |
|
Loading...