Arthritis and Musculoskeletal Alliance

ARMA News

The Cochrane Library – Special collections

NEW: Exercise for musculoskeletal conditions

Musculoskeletal conditions frequently have an adverse influence on health and quality of life, and cause more functional limitations than any other group of disorders within the adult population in most developed countries. Estimates from global data indicate that one in four people will experience chronic musculoskeletal pain at some time, and that musculoskeletal conditions are the most commonly reported cause of chronic impairments in the United States. Thus, musculoskeletal conditions are considered to be an international public health issue. Exercise therapy is considered an important component of the treatment of musculoskeletal conditions with the aims of: reducing pain; improving joint stability, functional ability, quality of life and aerobic capacity; and preventing bone loss and fractures.

This special collection brings together a selection of Cochrane Reviews assessing exercise for musculoskeletal conditions including: osteoarthritis, osteoporosis and rheumatoid arthritis, ankylosing spondylitis, fibromyalgia, juvenile idiopathic arthritis; regional musculoskeletal conditions in the knee, low back, neck and shoulder; and chronic musculoskeletal pain.

Read Online Now!

Transforming Patient Experience: the essential guide – available now!

Transforming Patient Experience: the essential guide is suitable for anyone with designated responsibility for improving patient experience – either as a provider of services or as a commissioner.

It contains practical guidance and covers the crucial aspects of:

  • The importance of organisational culture
  • Making the case for a patient experience improvements
  • Helping leaders and staff to improve patient experience
  • How to organise a patient experience programme
  • Commissioning for a positive patient experience

The resource includes the full research findings from What Matters To Patients? Developing the Evidence Base for Measuring and Improving Patient Experience a study undertaken by Kings College London and The Kings Fund.  (Commissioned by the Department of Health and the NHS Institute in 2010.)

The resource also highlights real life examples of how different types of organisations across the NHS have captured patient experience to drive service improvement, for example:

  • University College London on their involvement of prospective medical students in the collection of data from patients
  • Hertfordshire Partnership NHS Foundation Trust, who set out to make it easier for those with learning disabilities and their carers to submit their views
  • Essex County Council who realised the value of peer-to-peer work in researching service uptake by supporting volunteers to interview an older patient group

Transforming Patient Experience: the essential guide is intended to be a ‘living resource’ which we hope to update regularly with your case studies and ideas.  We hope that it will prove to be a useful source of ideas and inspiration and enable you to optimise your existing endeavours. 

For more information, visit www.institute.nhs.uk/theguide

 

National Joint Registry - Patient Focus Conference

Free event on 23rd March

From 9.30am to 2pm including lunch at THE WELLCOME COLLECTION

183 EUSTON ROAD, LONDON NW1 2BE

There will be short presentations to begin with from NJR members including clinicians to highlight NJR’s role and how we are working for patient safety.  These will be followed by two more detailed workshops, one looking at our Public & Patient Guide  and another, looking in more detail at NJR data and understanding the findings.  The event will conclude after lunch with a panel Q&A – we will be inviting questions prior to the event as well as picking up on those prevalent topics discussed in the workshops. 

Please visit the website for more information or to book a place, please contact rebecca.beaumont@hqip.org.uk or call 020 7469 2546.

 

 

 ARMA News

ARMA’s main channel of communication with its members is this website. As a key component of our service to the wider UK arthritis and musculoskeletal community, we are currently updating our website to ensure we continue to provide a valuable and easy-to-use resource.

       

 

 Standards Activities

News about development activities of the  Standards of Care give recommendations to local service commissioners and providers for services for the main groups of musculoskeletal conditions.

We greatly value the input of our licensees and want all members of the community to play an active role in this vital activity.

We’ll consult you on any changes that may affect your condition and the wider comunity – ensuring standards remain high, yet achievable.  

 

 

  Commissioning News

News of our engagement at all levels from the Commissioning Board to the Consortia and Healthwatch.

ARMA supports the development of the NHS commissioning board and welcomes their responsibility for specialised commissioning. ARMA encurages the wider engagement of patients and users and promotes the greater involvement of clinicians in commissioning activities.

ARMA through its wider membership is keen to become more involved in the development of outcome measures, implementation of evidence based care pathways and commissioning.

 

 

 

  eCampains

Please complete the below fields to sign up to our e-updates and receive the latest ARMA Campaigns news and actions.

We’ll send you a monthly e-newsletter with news from our campaigns, ways to get invovled and information about other things going on in the community. We’ll also get in touch when there are campaign actions we need your help with, usually around once a month.

We collect your address so that we can make sure we’re only sending you actions that are relevant to where you live.

 

 ARMA News

  • ARMA News: Our new website

    ARMA News: Our new website

         New ARMA website We are pleased to announce the launch of our new website! Our goal with the redesign of our website was to make the information that we give to you easier to find and more timely. If you have any questions or comments about the site in general, or anything in particular, please let us know.    New Features The website includes interactive features that will allow members and user to sign up for our monthly newsletter A4T. The home page also features ...

    Read More ...

  • ARMA e-postcards

    ARMA e-postcards

         ARMA Postcards What is an e-postcard -  it is a notification when new content is published on the ARMA website. To receive an ARMA e-postcard you must first have registered as a user. To subscribe is quite simple, go to your profile, click the link 'Your Subscriptions'. You will then be presented with a page of options, please select the topic area  of  interest. If you have subscribed to a topic, then when new content is published an email will be sent with a summary text ...

    Read More ...

  • NASS launch new telephone Helpline

    NASS launch new telephone Helpline

      The National Ankylosing Spondylitis Society (NASS) is officially launching their telephone helpline for people affected by ankylosing spondylitis (AS)   From 1 September 2011, the Helpline will be open between 0900 and 1200, Monday to Friday and will be staffed by Sally Dickinson, the Information Officer at NASS. Sally, who is also responsible for the published medical information and guidance, will be well supported by the team of medical advisers to NASS that include rheumatologists and physiotherapists.   The type of queries about ...

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  • Member post

    Member post

        Membership of ARMA We welcome applications from organisations working in the field of arthritis and other musculoskeletal conditions. Membership rates are calculated on a sliding scale depending upon size/income. Joining ARMA gives you the chance to add your voice to a growing, well-regarded umbrella organisation and helps to ensure that our policy and campaigning work reflects the needs of your constituency. Member organisations also benefit from sharing information and knowledge and strengthening their links with other organisations in the field.      Other benefits include: Opportunities to participate ...

    Read More ...

  • ARMA Website Development

    ARMA Website Development

        The brief ARMA is the umbrella body providing a collective voice for the arthritis and musculoskeletal community in the UK. ARMA's main channel of communication to members is their website. As a key component of their service to arthritis and musculoskeletal community in the UK, they wanted to ensure they were providing a valuable and easy-to-use resource. ARMA have completed consultation excercise with its members to gain an understanding what members and non-members wanted from this resource, and then to re-design the site ...

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  • Tocilizumab specifically licensed sJIA

    Tocilizumab specifically licensed sJIA

    Trials of a new medicine, called Tocilizumab, suggest that it is thrr times as effective at halting the progression of rheumatoid arthritis as the standard therapy given to most patients. Tocilizumab is a laboratory-made antibody, which works by targeting a biological signalling pathway linked to inflammation and the disease. Rheumatoid arthritis, the crippling auto-immune disease which attacks the joints, is the biggest cause of disability in the UK. The drug was already licensed for the treatment of adults. Tocilizumab is the first drug to be specifically ...

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  • World Arthritis Day – photo-competition

    World Arthritis Day - photo-competition

          Arthritis Day photo-competition and inspire and motivate others with rheumatic and musculoskeletal diseases (RMDs) to become more physically active and 'Move to Improve'    If you have an RMD you can enter a good quality photograph of yourself participating in your favourite physical activity, exercise or sport with a short statement about how this helps you overcome some of the physical challenges of your condition and how being active improves your life (http://www.worldarthritisday.org/action-shot-photo-competition)   Eligibility and prizes The competition is open to all people with RMDs ...

    Read More ...

 

 

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Improving access to NICE approved drugs

NICE is to produce a best practice guide to help trusts develop local formularies, as part of a move to ensure that all patients in England have access to clinically and cost-effective drugs.

Local formularies provide a list of selected or preferred drugs available to local prescribers and have an important role in underpinning safe and effective use of medicines.

However, there is currently no standard process or advice for putting together a local formulary which has led to variations across the country.

A recent report into innovation in healthcare by the Department of Health has highlighted that not all local formularies are including all of NICE’s technology appraisals. This can lead to a postcode lottery where patients miss out on drugs approved by NICE.

  The lack of integrated services to improve health and well-being across the NHS and local government is a missed opportunity to create long-term savings and make a real impact on patients and local communities.

The lack of integrated services to improve health and well-being across the NHS and local government is a missed opportunity to create long-term savings and make a real impact on patients and local communities. As demands on the NHS increase and reforms get underway, the service will need to embrace well-being to improve health and drive savings.

That is the message from a joint report produced by the NHS Confederation and the Faculty of Public Health on wellness services and the way they are integrated across health and social care.

Wellness services take a whole-person and community approach to improving physical and mental health to improve people’s overall health and wellbeing. They include services like weight management, smoking cessation and support in accessing physical activity services. 

The joint report, From Illness to Wellness, has been published with the aim of sharing learning among health and local government commissioners and providers and encouraging new ways of shifting organisational approaches towards wellness rather than just focusing on illness.

Commenting on the report NHS Confederation deputy director of policy Jo Webber, said: “It makes sense for health and local government to look at people’s health in the round, rather than splitting the population up into people who are or are not under clinical care. We need to take this opportunity to have a good look at how we can improve the health and well-being outcomes of our communities, provide more responsive and cost-effective care, whilst reducing pressure on the NHS.”

The report says locally developed approaches which embrace innovation will provide more responsive, cost effective care. It says taking a more holistic approach to health will help organisations align care and reduce the duplication of services. However, the way services are currently planned and provided means they have not yet fully embraced the idea of integrating physical and mental health and well-being.  

Jo Webber continued: “It is increasingly irrelevant to see good health as simply the absence of disease. The evidence says we need a different concept of good health or wellness that looks at things much more holistically.

“There are some big challenges for staff in the NHS and local government in making this change and our report sets out some key thinking about how to get on and implement solutions that are key to improving health and wellbeing.”

Professor Sarah Stewart-Brown, Chair of the Faculty of Public Health’s Mental Health Committee, said: “We fully support wellness services that take a whole-person, whole community approach to improving health. Our own reports on both children’s mental health and green spaces show how wellness plays an important part in tackling a range of health and social problems like obesity, mental illness and antisocial behaviour.

“At this time of major change in public health, it is critical that local authorities, health professionals and policymakers work together to promote wellbeing and tackle health inequalities.”

As the NHS and other parts of the public sector face an unprecedented financial challenge, the report is clear that the big opportunity for new structures such as health and well-being boards is to tackle the causes of ill health at source. Wellness services can help coordinate services such as occupational health, housing, smoking cessation and mental health provision.

The report summarises the growing body of evidence to support a shift in how the NHS should view health services and provides examples of where integrated approaches are being put in place.  It also provides answers to the questions posed by the Government’s Future Forum about what the NHS can do to keep the public’s health at the heart of the NHS.

Access the report here.

 

 

Implementing the National Quality Standard and Beyond

Thursday 8th March 2012, London

 

The draft NICE quality standard: Patient Experience in Adult NHS Services has been published and is in consultation.  It focuses on generic patient experiences and is relevant for all people using adult NHS services.

Chaired by Sophie Staniszewska Chair Guideline Development Group The NICE Quality Standard for Patient Experience in Adult Services, this conference provides an important update on patient experience with a focus on the new NICE quality standard including how it was developed and how progress will be monitored. 

Download here.

Following an opening presentation from Dianne Kennard Head of Patient Engagement and Experience Department of Health who will discuss implementing the white paper vision which focuses on patient experience as a key arbiter of all NHS services, delegates will then hear from experienced speakers on:

  • Measuring the patient experience from a patient perspective
  • Developing a patient experience dashboard
  • Looking at what needs to change and how implementation can be monitored at a clinical practice, ward, directorate and organisational level: A Panel Discussion 
  • Real time patient experience, feedback and action
  • Understanding and improving patient experienced with PROMS

 

 policy_finish1

   New ARMA website

We are pleased to announce the launch of our new website!

Our goal with the redesign of our website was to make the information that we give to you easier to find and more timely. If you have any questions or comments about the site in general, or anything in particular, please let us know.

   New Features

The website includes interactive features that will allow members and user to sign up for our monthly newsletter A4T.

The home page also features information how you how you can become involved, add comments, provide feedback or contributions. If you are engaged with a Local Network them send us news and events. 

A click or two on the site will take you to pages on standards and Health Policy

We have the event calendar which shows up-comming meeting.

Other links take readers to pages where they can read the ARMA standards or take part in on-line discussions through our moderated forums.

   

Recruitment of Chief Executive

We are currently looking to recruit a full-time Chief Executive responsible for managing the Society and ensuring it fulfills its charitable objectives. The person chosen will be responsible for implementing the Society’s 5-year business plan.

For an overview of the Society and the role please download the full job advertisement.

For full details of the role, please download the job description.

For details of the type of person we are looking to recruit please download the personal specification.

To apply, please download the application form and once completed please email it to apply@sclerodermasociety.co.uk

 

ARMA welcomes NICE announcement to develop quality standards for musculoskeletal conditions…

 

The Arthritis and Musculoskeletal Alliance (ARMA) and its 37 member organisations welcomes the announcement by the National Institute of Clinical Excellence (NICE) to include rheumatoid arthritis, low back pain, seronegative arthropathies, elective joint replacement (hip, knee and shoulder) and osteoarthritis, in its proposed list of NHS healthcare topics for quality standard development.

ARMA Director Ros Meek said:

“ARMA and its members welcome the announcement by NICE to develop quality standards for key musculoskeletal conditions including rheumatoid arthritis and low back pain. ARMA has been calling for the development of such standards since May 2010 and looks forward to working with NICE to ensure that these conditions are included in the final list of agreed quality standard topics. 9.6 million adults and 12,000 children in England suffer from a musculoskeletal condition and NICE’s decision to recognise these conditions in the list of proposed quality standards is a positive development which should help raise the quality of care delivered to patients.”

“ARMA continues to call on the Department of Health to develop a national outcomes strategic approach to musculoskeletal conditions t0 ensure that musculoskeletal conditions are fully prioritised in the new NHS and that the government’s reforms help deliver improved outcomes for patients.”

 

 

 

About musculoskeletal conditions:

  • Musculoskeletal conditions encompass around 200 different problems affecting the muscles, joints and skeleton
  • Nearly 10 million adults, and over 10,000 children, have a musculoskeletal condition in England today
  • Musculoskeletal conditions are a major area of NHS expenditure, comprising a separate ‘programme budget’ which – in 2009-10 – consumed £4.76 billion
  • This represents a greater spend than on neurological conditions, blood disorders, and infectious diseases, and is an equiva-lent level of expenditure to that on respi-ratory conditions
  • Expenditure on musculoskeletal conditions has increased rapidly in recent years, and is now the fourth-highest area of NHS spending

 

 

 References

 

Department of Health, Musculoskeletal Services Framework , July 2006

Department of Health, Musculoskeletal Services Framework , July 2006

Department of Health, Programme Budgeting Data, 2009-10

Department of Health, Programme Budgeting Data, 2009-10

Department of Health, Programme Budgeting Data , 2009-10