Arthritis and Musculoskeletal Alliance

Patients

Patients Campains


Patients News and Views

Inflammatory Arthritis public awareness campaign

Developed by the Rheumatology Futures Project Group (RFPG) and endorsed and supported by Arthritis Research UK, the Royal College of GPs and The Primary Care Rheumatology Society.

The RFPG are also hoping for Department of Health backing for this campaign which was one of the key recommendations in the National Audit Office Report published in July 2009.

Inflammatory Arthritis? Have you got the ‘S’ Factor?

  • Stiffness - Early morning joint stiffness lasting more than 30 minutes
  • Swelling - Persistent swelling of one joint or more, especially hand joints
  • Squeezing - Squeezing the joints is painful in inflammatory arthritis

The message to the general public is: ‘If you have any symptoms highlighted in the poster which might possibly relate to either rheumatoid arthritis, psoriatic arthritis or ankylosing spondylitis, which are the three most common forms of inflammatory arthritis, then seek help from your GP, don’t delay’.

The Rheumatology Futures Project Group (RFPG)

The RFPG is a coalition of patient and professional organisations representing the entire rheumatology community (primary care, secondary care, consultants, GPs, nurses and allied health professionals, patient organisations) and the pharmaceutical industry.

The RFPG was specifically formed in 2007 to develop and execute a collaborative and clearly‐defined programme of work to identify barriers to providing high‐quality rheumatology services for people with rheumatoid arthritis (RA) across England, and to explore what high quality care should look like and how it could be delivered and was limited to a three year, time limited project which ends summer 2010.

 

 

 

 Patients News and Views

This news feed is contributions from ARMA members, news of forthcoming events, details of new publications and other items of interest.

ARMA provides an informal publication tool which provide members with an opportunity to communicate with others within the arthritis and musculoskeletal community. In fact the Newsletter relies on material sent in by members and others.

 

 

 A4T Newsletter

The editor is always grateful for contributions. Any information of interest to the ARMA members and community is welcome, including new publications, news of events and campain results.

Electronic contributions on disk or by email, preferably in Word or PDF formats are welcomed – as are scans of any images that can be used free of charge – but any format including typescripts, manuscripts, hard copy images for scanning or phone communications are equally acceptable.

 

 

  Multimedia News

Please complete the below fields to sign up to our new muktimedia news feeds and receive the latest ARMA Campaigns news and actions.

We collect your address so that we can make sure we’re only sending you actions that are relevant to where you live.

 

 Patients News and Views

  • EULAR PARE – Edgar Stene Prize – Essay competition

    EULAR PARE - Edgar Stene Prize - Essay competition

         "Overcoming the challenges of getting around  with a rheumatic or musculoskeletal disease"   Every year EULAR and the Standing Committee for PARE offer the Edgar Stene Prize for the best essay on a previously determined topic. The Stene Prize is EUR 2,000 and includes travel to the Annual EULAR Congress of that year with hotel accommodation for up to four nights as well as an invitation to attend the Opening Ceremony and the Gala Dinner at the congress. The EULAR member organisations of ...

    Read More ...

  • The third Annual Fit for Work Europe Conference

    The third Annual Fit for Work Europe Conference

          The third Annual Fit for Work Europe Conference   The third Annual Fit for Work Europe Conference took place on Wednesday 19 October 2011 in Brussels, endorsed by the Polish Presidency of the EU.    Attracting over 170 delegates from across Europe, including healthcare professionals, policy makers, patients, employers and trade unions, this year's conference was the most successful ever. The central theme of the conference was ‘Change with Us: Practical steps and solutions towards making musculoskeletal diseases (MSDs) a health and work priority at ...

    Read More ...

  • Chain Of Trust

    Chain Of Trust

      European Patients' Forum EU project co-financed by the EU Public Health Programme                                                            The European Patients' Forum (EPF) is implementing, together with other six partners, an EU project co-financed by the EU Public Health Programme called "Chain of Trust". Started in January 2011, this project aims to assess the perspectives of the main end users of telehealth services, i.e. patients, doctors, nurses and pharmacists across the EU to see whether and how views have evolved since the initial deployment of telehealth and what ...

    Read More ...

  • World Arthritis Day – photo-competition

    World Arthritis Day - photo-competition

          Arthritis Day photo-competition and inspire and motivate others with rheumatic and musculoskeletal diseases (RMDs) to become more physically active and 'Move to Improve'    If you have an RMD you can enter a good quality photograph of yourself participating in your favourite physical activity, exercise or sport with a short statement about how this helps you overcome some of the physical challenges of your condition and how being active improves your life (http://www.worldarthritisday.org/action-shot-photo-competition)   Eligibility and prizes The competition is open to all people with RMDs ...

    Read More ...

 

 

:
 

                 

Patient Reported Outcome Measure

(PROM)

                                                                                                                                                                                   

 Dr Jonathan Hill from Keele University is working on a new patient reported outcome measure (PROM) to help evaluate the quality of clinical services for patients with musculoskeletal conditions, such as back pain.  He has run initial consensus building exercises and would now like to consult with as many patients as possible for their opinions. 

You can give your opinion by clicking on the link below – it’s a chance to help towards the development of an outcome measure that captures what we as patients feel is important. The first 2 pages are standard research consent, the actual consultation is quick – only one short page but does need some careful thought. Intrigued?  Take a look.

 https://docs.google.com/spreadsheet/viewform?formkey=dHdpN08xbmxiYUVMRlIza2lneGNFOVE6MQ